New partnership to build stronger advocacy in Central, Eastern and Southern Europe

Jul 31, 2020

In the efforts to build a stronger international “one voice” for the Familial Hypercholesterolaemia community, FH Europe is pleased to partner with ScreenPro FH. This international project was created to improve complex care – screening, diagnosis and treatment of familial hypercholesterolemia in Central, Eastern and Southern Europe. It encompasses 23 counties, where we as the Network do not always have established connections. With this partnership in place FH Europe intends to collaborate with ScreenPro FH and its members to deliver on our shared mission and reach countries with unmet needs.

Aim of the ScreenPro FH project is to develop a network of centres of excellence for patients with familial hypercholesterolemia in the region of Central Eastern and Southern Europe. The centres will optimise and unify the process of screening, diagnosis and effective treatment of familial hypercholesterolemia. An important element of the collaboration of the 2 organizations pivots around educating and increasing awareness of familial hypercholesterolemia amongst general public and physicians (GPs, internists, cardiologists, diabetologists). “We are really happy for this new active partnership with FH Europe, as we know how important efficient communication between specialists and patients is. We hope that new patient activities and our expanded network can only improve everyone involved or dealing with FH.” ScreenPro FH Team.

Joint aims of the partnership are:

  • to disseminate the information about the burden of FH to an international audience including patients’ organisations, physicians, other healthcare professionals and policymakers,
  • to help reduce gaps in knowledge, inform best practices, assist in clinical trials design, share and exchange of educational materials, support clinical guidelines and policies development,
  • to better inform public-health policy on the detection and treatment of FH,
  • and ultimately, to improve the care of FH patients.

“Some of the FH Europe Network organizations are already part of ScreenPro FH project or closely collaborate with its members’ in their respective countries. It is therefore a natural step in our goal to raising awareness and educating about the condition, both among general public and the medical community (including primary and specialty care), as well as the health care delivery systems.” – said Magdalena Daccord, FH Europe Chief Executive.

For more information on ScreenPro FH project please visit http://screenprofh.com/ .

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FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is registered as a charity; Charity number 1170731, registered in England and Wales.

FH Europe is supported by an educational grant from Amgen Limited, Sanofi, Regeneron, Akcea Therapeutics Inc. and Amryt
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